HD - It's Not High Def Anymore

Retrieved from: https://huntington.se/wp-content/uploads/2023/05/Skarmavbild-2023-05-12-kl.-13.48.10.png  Next Month (May) is Huntington's Disease Awareness Month. One of the ways I was going to try to bring awareness to Huntington's is writing a letter to my local municipal council. Below is what I wrote to the Municipal Council for the Municipality of South Dundas. ** Members of Council, My name is Christian Mueller and I am writing to you today to ask that South Dundas Council formally recognizes May as Huntington's Disease Awareness Month. Huntington's Disease is a rare brain disorder that affects many families both in Canada and worldwide. In this email I'll give a short run down on Huntington's Disease and the impact has. Huntington's Disease, often called HD, is a rare brain disorder that has symptoms that are equivalent to having Alzheimer's, Parkinson's, ALS, and Schizophrenia all at the same time. As well, Huntington's is genetic. It is...

Retrieved From: https://thehealthinsider.ca/wp-content/uploads/2024/01/Untitled-design-1024x533.png Most people who are at-risk for the Huntington's Disease genetic don't go through with predictive genetic testing. It is an extremely personal decision that takes so much reflection and consideration. In this post, I am going to talk a little bit about what led to my decision to be tested and what the testing process was like. Even from a young age, I had continuously considered whether or not I wanted to be tested for Huntington's Disease. Huntington's disease had (and continues to) wreacked havoc on so many people that I hold near and dear to my heart. I had witnessed first hand how horrific Huntington's is, mainly by seeing how it affected by mom over time. I think by the time I was fourteen, I had known that I would want to be tested. I had spent so much time learning about Huntington's. When possible, I made it the topic of my projects in school. I used any p...

Retrieved from: https://my.clevelandclinic.org/health/diseases/14369-huntingtons-disease   Alzheimer's Disease  Parkinson's Disease ALS Schizophrenia Those four diseases are some of the most serious and worst diseases known to man. Personally, there is one that I like to think trumps them all...    HUNTINGTON'S DISEASE Huntington’s Disease (often referred to as Huntington’s or HD) is a rare, terminal, hereditary neurodegenerative disorder. The easiest way to describe it is to say it is almost equivalent to having Alzheimer’s Disease, Parkinson’s Disease, ALS, and Schizophrenia simultaneously. I say “almost equivalent” because for some sciency-biologyish way, not everyone experiences the disease process the same way. In the next few paragraphs, I’ll take a little bit of a deeper dive into Huntington’s - I have extensive personal experiences with it, so I consider myself a bit of an expert. Huntington’s is rare. The World Health Organization classifies a disease as “r...

 Hello and Welcome to HD - It's Not High Def Anymore! The Test Result That Changed My Life   My name is Christian and on May 4, 2022 I was was told the above result by a medical genetcist from the Children's Hospital of Eastern Ontario - I inherited a genetic mutation. This genetic mutation causes Huntington's Disease. This horrible disease is prevalent in my family - my grandfather and mother both passed from it.  When asked to describe what Huntington's Disease is, the first words that often pop into my head are " the worst disease you've never heard of ". Huntington's is a rare, terminal, neurodegenerative disorder that is often referred to as having ALS, Alzheimer's Disease, Parkinson's and Schizophrenia simultaneously. It's an autosomal dominant genetic disorder - that's just a fancy science-y way of saying that Huntington's is caused by a genetic mutation. Autosomal dominant just refers to the way the genetic mutation is pass...