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Showing posts from April, 2025

A Letter to Council - Asking for Local Recognition

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Retrieved from: https://huntington.se/wp-content/uploads/2023/05/Skarmavbild-2023-05-12-kl.-13.48.10.png  Next Month (May) is Huntington's Disease Awareness Month. One of the ways I was going to try to bring awareness to Huntington's is writing a letter to my local municipal council. Below is what I wrote to the Municipal Council for the Municipality of South Dundas. ** Members of Council, My name is Christian Mueller and I am writing to you today to ask that South Dundas Council formally recognizes May as Huntington's Disease Awareness Month. Huntington's Disease is a rare brain disorder that affects many families both in Canada and worldwide. In this email I'll give a short run down on Huntington's Disease and the impact has. Huntington's Disease, often called HD, is a rare brain disorder that has symptoms that are equivalent to having Alzheimer's, Parkinson's, ALS, and Schizophrenia all at the same time. As well, Huntington's is genetic. It is...

The Test That Predicts The Future

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Retrieved From: https://thehealthinsider.ca/wp-content/uploads/2024/01/Untitled-design-1024x533.png Most people who are at-risk for the Huntington's Disease genetic don't go through with predictive genetic testing. It is an extremely personal decision that takes so much reflection and consideration. In this post, I am going to talk a little bit about what led to my decision to be tested and what the testing process was like. Even from a young age, I had continuously considered whether or not I wanted to be tested for Huntington's Disease. Huntington's disease had (and continues to) wreacked havoc on so many people that I hold near and dear to my heart. I had witnessed first hand how horrific Huntington's is, mainly by seeing how it affected by mom over time. I think by the time I was fourteen, I had known that I would want to be tested. I had spent so much time learning about Huntington's. When possible, I made it the topic of my projects in school. I used any p...